2004 MEDLINE ENGLISH QUANTI/ QUALITATIVE |
The development of a new measure of quality of life for young people with diabetes mellitus: the ADDQoL-Teen 8
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To assess the psychometric properties of ADDQoL-Teen, an innovative individualized, patient-centered questionnaire that measures the impact of diabetes mellitus on the quality of life (QOL) of adolescents. |
23 adolescents |
13-16 years |
Semi-structured interviews; group discussion, ADDQoL-Teen |
The ADDQoL-Teen is a new, perceived measure of the impact of diabetes and its treatment on adolescents’ QOL, which will help health professionals and parents consider quality of life issues as well as medical outcomes when caring for young people with diabetes. It can be used in clinical trials and for routine clinical monitoring in the context of ongoing evaluation. |
2007 LILACS/ BDENF PORT QUANTITATIVE |
Quality of Life Tool for Young People with Diabetes (IQVJD) 9
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To provide the Quality of Life Tool for Young People with Diabetes (IQVJD), from the American tool “Diabetes Quality of Life for Youths”, in view of the lack of specific tools for assessing the Health-Related Quality of Life (HRQOL) of young people with Type 1 Diabetes Mellitus (DM) in Brazil. |
124 adolescents with Type 1 DM |
12-18 years |
Quality of Life Tool for Young People with Diabetes (IQVJD) |
It is believed that the dissemination of IQVJD for the implementation in Brazilian adolescents with type 1 DM can contribute to an effective improvement of the quality of care provided to these people. |
2007 MEDLINE ENGLISH QUANTITATIVE |
Monitoring health-related quality of life in adolescents with diabetes: a review of measures 10
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To identify and evaluate the use of generic (HRQoL) and diabetes-specific questionnaires for use in adolescents with type 1 diabetes. |
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Child Health Questionnaire-Child Form 87 (CHQ-CF87); Pediatric Quality of Life Inventory 4.0 (PedsQL 4.0); Revidierter KINDer Lebensqualitäts- fragebogen (KINDL-R); DISABKIDS chronic generic module; Diabetes Quality of Life-Youth questionnaire (DQOL-Youth); PedsQL-Diabetes Module (PedsQL-DM); KINDL-R-Diabetes Module (KINDL-R-DM); Audit of Diabetes Dependent Quality of Life-Teen version (ADDQoL-Teen); DISABKIDS-Diabetes Module (DISABKIDS-DM) |
PedsQL and KINDL-R appear, at the time of the study, to be the most adequate tools to evaluate the quality of life of adolescents with DM1, |
2008 LILACS/BDENF ENG/POR/SPA QUANTITATIVE |
Cultural Adaptation and Validation of The “Diabetes Quality of Life for Youths” Measure of Ingersoll and Marrero into Brazilian Culture 11
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To adapt the “Diabetes Quality of Life for Youths (DQoLY)” measure to Brazilian culture and analyze its psychometric properties. |
124 adolescents |
12-18 years |
Diabetes Quality of Life for Youths (DQoLY) |
The translated version of DQoLY adapted to the Brazilian culture is a reliable and valid measure to be used in studies in Brazil |
2008 MEDLINE ENGLISH QUANTITATIVE |
Impact of clinical status and salivary conditions on xerostomia and oral health-related quality of life of adolescents with type 1 diabetes mellitus 12
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To investigate the influence of clinical salivary conditions with the presence of xerostomia in adolescents with and without type 1 diabetes mellitus (DM1); and to investigate the influence of clinical status, salivary conditions and xerostomia on oral health-related quality of life (OHQoL) in patients with DM1 |
102 adolescents, 51 with diabetes and 51 without diabetes |
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Oral health-related quality of life (OHQoL) |
DM1 was shown to be predictive of a high prevalence of xerostomia in adolescents. Caries and xerostomia were found to have a negative impact on the OHQoL of adolescents with DM1. |
2008 MEDLINE ENGLISH QUANTITATIVE |
Impact of family environment and support on adherence metabolic control, and quality of life in adolescents with diabetes 13
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To determine the impact of family factors on diabetes, especially the influence of family support and family environment on adherence to treatment, quality of life and metabolic control in Portuguese adolescents with type 1 diabetes. |
157 adolescents |
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Family Environment Scale; Self-Report Questionnaire on Adherence; Diabetes Family Behavior Scale; |
The results confirmed that adherence was predicted by family support for women and lower-class patients, while metabolic control was predicted by family conflicts for upper-class patients. Quality of life was predicted by lack of family conflict and social support of the family for both males and females, as well as lower-class patients. The results highlight the importance of studying family variables in diabetes care of adolescents within the wider cultural factors that affect the patient. |
2008 MEDLINE ENGLISH QUANTITATIVE |
Pilot study of a novel educational programme for 11–16 year olds with type 1 diabetes mellitus: the KICk-OFF course 14
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To implement and evaluate an educational program (Kick-off) for children and adolescents with DM1. |
48 participants |
11-16 years |
Semi-structured interviews with children and parents |
The Kick-off educational program was well received by children and parents, There were no changes in HbA1c levels, BMI or episodes of hypoglycemia, but was associated with improved quality of life. |
2009 MEDLINE ENGLISH QUANTITATIVE |
Impact of xerostomia on the quality of life of adolescents with type 1 diabetes mellitus 15
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To assess the impact of xerostomia on the quality of life (QoL) of adolescents with type 1 diabetes mellitus (DM1). |
51 adolescents |
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Quality of Life (QoL) |
Xerostomia is frequent and has a negative impact on the quality of life of adolescents with DM1. |
2009 MEDLINE ENGLISH QUANTITATIVE |
Missed bolus doses: devastating for metabolic control in CSII-treated adolescents with type 1 diabetes 16
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To investigate the management of continuous infusion of subcutaneous insulin (CSII) in adolescents with type 1 diabetes, including its administration of bolus doses and to study the relationships between insulin omission and metabolic control, body mass index, daily frequency of self- monitoring of blood glucose (SMBG) and bolus doses, quality of life (QoL), diabetes burden and treatment satisfaction. |
90 adolescents |
12-18 years |
Health-Related Quality of Life (HRQoL) |
Forgetfulness of insulin was common. Those who forgot the doses were less satisfied and perceived more impact with the treatment. Daily bolus and SMBG frequencies were associated with better metabolic control. Teams that work with diabetes require strategies to guide adolescents on how to avoid forgetting insulin. |
2010 MEDLINE ENGLISH QUANTITATIVE |
Correlates of glycemic control and quality of life outcomes in adolescents with type 1 diabetes 17
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To investigate the factors associated with A1c and QoL using a methodology that considers these variables as simultaneous results |
261 adolescents |
13-18 years |
Quality of Life (QoL) |
Risk factors related to disease, management and personal characteristics that influence glycemic control and quality of life were observed. The findings may contribute to physicians’ choice of more appropriate interventions that help adolescents achieve glycemic control without sacrificing quality of life. |
2010 MEDLINE ENGLISH QUALITATIVE |
Iranian diabetic adolescent girl’s quality of life-perspectives on barriers 18
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To explore prospects of Iranian diabetic adolescents so that they may have a good quality of life. |
20 female adolescents with DM1 |
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Semi-structured interview |
Two effective barriers to good quality of life have been identified: (1) external barriers to good quality of life (family problems, social outlook on diabetes and school problems), (2) individual barriers to good QoL (negative feeling for treatment and care, negative effects of diabetes and uncertainty about the future). |
2010 MEDLINE ENGLISH QUANTITATIVE |
Quality of life and associated factors among Jordanian adolescents with type 1 diabetes mellitus 19
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To evaluate the HRQoL of Jordanian adolescents with type 1 diabetes mellitus and its associated factors. |
145 adolescents |
- |
Short form of the Diabetes Quality of Life for Youth (DQLQY-SF) |
The HRQoL of Jordanian adolescents with type 1 diabetes was low. Improved glycemic control may contribute to improved quality of life. |
2011 MEDLINE ENGLISH QUANTITATIVE |
Chat line for adolescents with type 1 diabetes: a useful tool to improve coping with diabetes: a 2-year follow-up study 20 . |
To evaluate the impact of a 2-year-old chat line involving adolescents with type 1 diabetes in relation to quality of life and metabolic control. |
193 adolescents |
10-18 years |
Diabetes Quality of Life for Youth Inventory (DQoLY) |
A chat line is also a cheap and effective tool that helps to improve the diabetes alliance. The chat line can help the diabetes care team understand and treat their patients more comprehensively. In addition, it could help patients cope better with their daily lives. |
2011 MEDLINE ENGLISH QUANTITATIVE |
Coping and resilience in adolescents with type 1 diabetes 21
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To use a sensitive coping development approach and explore how the use of particular coping strategies affect resilience (i.e. quality of life, competence and metabolic control) in adolescents with DM1. |
33 adolescents and their mothers |
10-16 years |
Responses to Stress Questionnaire (RSQ) |
The study results support the use of developmentally sensitive coping measures by researchers and physicians to determine the most effective coping strategies for adolescents with DM1. |
2011 MEDLINE ENGLISH QUANTITATIVE |
Factors influencing the quality of life of young patients with diabetes 22
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To evaluate the quality of life of young patients with diabetes, as well as the factors that affect it. |
98 young patients |
11-18 years |
Diabetes Quality of Life for Youths Questionnaire (DQoLY) |
The quality of life of young diabetics was influenced by demographic, somatometric and other characteristics of diabetes. Increased metabolic control, participation in sports activities and a greater number of insulin infusions resulted in a better quality of life. Increased patient age, duration of diabetes, HbA1c, BMI and the coexistence of various health problems, as well as the use of an insulin pump, decreased the quality of life. |
2011 MEDLINE ENGLISH QUANTITATIVE |
Influence of combined aerobic and resistance training on metabolic control, cardiovascular fitness and quality of life in adolescents with type 1 diabetes: a randomized controlled trial 23
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To evaluate the effect of physical training combined with metabolic control, physical fitness and quality of life in type 1 diabetic adolescents. |
16 adolescents (8 from control group and 8 from the intervention group) |
10-18 years |
General Health Survey Short Form (SF-36) |
Combined physical training seems to decrease daily insulin requirements and improve physical fitness along with better well-being. |
2011 MEDLINE ENGLISH QUANTITATIVE |
Short Form of the Chinese Version Diabetes Quality of Life for Youth Scale- A psychometric testing in Taiwanese adolescents with type 1 diabetes 24
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Test the psychometric properties of the short form of the Chinese tool for Quality of Life of Young People with Diabetes (C-DQOLY-SF). |
371 adolescents |
9-19 years |
Short form of the Diabetes Quality of Life for Youth (DQLQY-SF) |
The C-DQOLY-SF has satisfactory reliability and validity. C-DQOLY-SF can be conveniently used in clinical settings to assess the quality of life of adolescents with type 1 diabetes. |
2012 MEDLINE ENGLISH QUANTITATIVE |
A flexible diet using an insulin to carbohydrate ratio for adolescents with type 1 diabetes - a pilot study 32
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To assess glycemic control, weight status, and quality of life over 12 months in adolescents with type 1 diabetes, who initiated a flexible meal planning using an insulin proportional to carbohydrate counts. |
28 adolescents |
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Diabetes Quality of Life -Youth questionnaire(DQoLY) |
Glycemic control was impaired, but improved weight status and life satisfaction, both important aspects to adolescents. |
2012 MEDLINE/ ENGLISH QUANTITATIVE |
Assessing diabetes-related quality of life of youth with type 1 diabetes in routine clinical care: the MIND Youth Questionnaire (MY-Q) 27
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To describe developmental and psychometric assessment using the Monitoring Individual Needs in Diabetes Youth Questionnaire (MY-Q), a multi-dimensional HRQoLself-report questionnaire developed for the care of diabetes in pediatrics. |
22 young people in the validation test + 84 young people with DM1 |
10-18 years |
Monitoring Individual Needs in Diabetes Youth Questionnaire (MY-Q) |
MY-Q is the first HRQoL questionnaire developed for use in clinical care, with acceptable measurement properties and that seems appropriate for routine care of adolescents with diabetes. |
2012 MEDLINE ENGLISH QUANTITATIVE |
Coping, Self-Management, and Adaptation in Adolescents with Type 1 Diabetes 29
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To examine the relationship between reactivity and stress coping with self-management, quality of life and metabolic control in an ethnically diverse sample of adolescents with type 1 diabetes. |
327 adolescents |
11-14 years |
Responses to Stress Questionnaire (RSQ); Self-Management in Adolescents with Diabetes questionnaire; Pediatric Quality of Life instrument |
The results indicate differences in coping related to income and race/ethnicity and show the impact of coping on self-management and health outcomes in adolescents with type 1 diabetes. |
2012 MEDLINE ENGLISH QUANTITATIVE |
Health-Related Quality of Life Among German Youths With Early-Onset and Long-Duration Type 1 Diabetes 30
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To evaluate the self-report of children and adolescents and their parents about the general health status and the relationship of health with quality of life (QoL) in children and adolescents with type 1 diabetes of early and long-term onset compared to the general population in Germany. |
629 subjects and their parents |
11-17 years |
Generic KINDL-R Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents |
Compared to the general population, quality of life and overall health status were not impaired among those aged 11-17 years with the type of early onset DM1 despite the challenges of modern therapy. |
2013 MEDLINE ENGLISH QUANTITATIVE
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Diabetes self-management, depressive symptoms, quality of life and metabolic control in youth with type 1 diabetes in China 31
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To assess diabetes self-management, depressive symptoms, quality of life and metabolic control in a cohort of young people with type 1 diabetes in mainland China. |
136 young people |
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Chinese young people with DM1 report low self-management more than young people in the US and high depressive symptoms. Glycemic control and quality of life were below normal. There is an urgent need for more clinical consultations, treatment of high depressive symptoms and an intensive insulin regimen for young people with DM1 in China to improve self-management of diabetes and to help them adapt and live with the disease. |