Influence of health care practices on the burden of caregiver mothers

Ferreira, Fernanda Yeza; Xavier, Mariane Caldeira; Baldini, Paula Rossi; Ferreira, Larissa Tassim Luciano; Lima, Regina Aparecida Garcia; Okido, Aline Cristiane Cavicchioli

doi:10.1590/0034-7167-2019-0154

Brasil

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ORIGINAL ARTICLE • Rev. Bras. Enferm. 73 (Suppl 4) • 2020 • https://doi.org/10.1590/0034-7167-2019-0154 linkcopy

Influence of health care practices on the burden of caregiver mothers

Influencia de las prácticas asistenciales en la carga de las madres cuidadoras

Authorship SCIMAGO INSTITUTIONS RANKINGS

ABSTRACT

Objectives: to explore the influence of health care practices on the burden of caregiver mothers of children with special health needs.

Methods: observational, analytical, cross-sectional, quantitative study. Participation of 100 caregiver mothers, who responded the following instruments: characterization instrument; Burden Interview for Informal Caregivers; Perceptions of Family-Centered Care - Parents version; Evaluation Instrument for Primary Care - Child Version. For statistical analysis, were used the Spearman’s Correlation and univariate and multivariate linear regression analysis.

Results: the mean burden score was 47.99. There was a negative correlation between the burden and the domains of collaboration and support of the Perceptions of Family-Centered Care scale. In the multivariate linear regression model, the longitudinality variable maintained a significant relation with the burden (p = 0.023).

Conclusions: a shared, longitudinal and integrated care between families and health services can ease the burden of caregiver mothers.

Descriptors: Child; Nursing; Caregivers; Mothers; Health Services

Variables	Mean score	SD	Minimum	Q1	Median	Q3	Maximum
PFCC-Overall	3.63	0.28	2.33	3.51	3.71	3.81	4.00
PFCC-Collaboration	3.49	0.30	2.44	3.33	3.56	3.67	4.00
PFCC-Support	3.68	0.49	1.60	3.60	3.80	4.00	4.00
Longitudinality	7.16	2.33	2.00	5.00	8.00	9.00	10.00
Coordination	6.05	2.57	0.00	4.17	6.25	8.33	10.00

		PFCC- Collaboration	PFCC- Support	PFCC- Overall	Longitudinality	Coordination
Burden	r	-0.20573	-0.21258	-0.15957	-0.27906	-0.16441
	p	0.0337	0.0337	0.1128	0.0323	0.2134
	n	100	100	100	59	59

Variable	Beta (SE)^* * Beta - estimate value or slope coefficient in the regression line; SE - beta standard error;	p value	R²^ R2 - coefficient of determination (% of variability of the response variable explained by the independent variable). Variables without normal distribution were ranked.
PFCC/Overall	-0.16 (0.10)	0.113	0.0255
PFCC/Collaboration	-0.21 (0.10)	0.040	0.0423
PFCC/Support	-0.23 (0.11)	0.034	0.0337
Longitudinality	-0.50 (0.22)	0.027	0.0830
Coordination	-0.29 (0.22)	0.196	0.0291

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Associação Brasileira de Enfermagem SGA Norte Quadra 603 Conj. "B" - Av. L2 Norte 70830-102 Brasília, DF, Brasil, Tel.: (55 61) 3226-0653, Fax: (55 61) 3225-4473 - Brasília - DF - Brazil
E-mail: reben@abennacional.org.br

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[TFN1] Note: PFCC - Perceptions of Family-Centered Care; SD - Standard Deviation; Q – Quartile.