Open-access Chronic disease in childhood and adolescence: continuity of care in the Health Care Network *

Enfermedad crónica en la infancia y adolescencia: continuidad del cuidado en la red de atención sanitaria

abstract

OBJECTIVE  To evaluate the continuity of care for children and adolescents with chronic diseases in the health care network.

METHODS  This qualitative study was conducted between February and October 2013 with 12 families, six health managers, and 14 health professionals from different health care services in a municipality of the state of Paraíba, Brazil, using focal groups, semi-structured interviews, and medical record consultation. The data were analyzed by triangulation and thematic analysis.

RESULTS  Two categories were created: “health care management” and “(dis)continuity of care.” We found gaps in the system, including poor data recording aimed to facilitate follow-up and guide the planning actions as well as sporadic and discoordinate services with a limited flow of information, which hinders follow-up over time.

CONCLUSION  Continuity of care in the health care network is limited and creates the need to develop strategies to improve these services.

Descriptors Child Health; Adolescent Health; Chronic Disease; Continuity of Patient Care; Health Care; Pediatric Nursing

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Universidade de São Paulo, Escola de Enfermagem Av. Dr. Enéas de Carvalho Aguiar, 419 , 05403-000 São Paulo - SP/ Brasil, Tel./Fax: (55 11) 3061-7553, - São Paulo - SP - Brazil
E-mail: reeusp@usp.br
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